Endometriosis is a condition that can go undiagnosed for 10+ years, and in some cases up to 20 years.
Symptoms are not always obvious, and sometimes they may seem unrelated to endometriosis. It is important that women are aware of symptoms that may appear to be caused by other conditions but can actually be linked to endometriosis.
Some possible symptoms include:
- Pain during urination
- Pain during bowel movements
- Intermittent bleeding
- Back pain
- Leg and hip pain
- Bloating (IBS-like symptoms)
But there is light at the end of the tunnel!
The NHS has introduced a new initiative that may help women receive an earlier diagnosis and faster support for treatment than in the past.
So what does this mean for women with suspected endometriosis?
- Symptom-based diagnosis
- Pelvic ultrasound following a referral from a GP to support diagnosis
Although this is a positive step forward, not all endometriomas can be seen on a pelvic ultrasound. They are often more clearly detected on an MRI scan. Because of this, it remains essential to advocate for yourself and your health.
Do not give up.
Keeping a symptom diary can be very helpful. Record:
- What symptoms do you experience
- How long they last
- When they occur
- How intense they are
With the right support and treatment, endometriosis can be managed, and in some cases trying to conceive may still be possible. If you are considering having children, speak with your GP about a fertility referral as early as possible.
What you can do in the meantime
Whether before or after diagnosis, some steps may help manage symptoms:
- Eat whole, balanced foods
- Stay physically active
- Manage stress and anxiety
- Be kind to yourself
Living with endometriosis can be an emotional journey. Seeking help and support is important, and it is completely normal to feel overwhelmed at times.
Support resources
- Endometriosis UK, Helpline: 0808 808 2227
- Samaritans
- Speak to your GP about talking therapies
You are not alone, and support is available.
